Rheumatic Heart Disease
Finding and treating those children most at risk
Enabling early detection and access to treatment
We are currently supporting the ministry of health by running the national database of RHD patients, helping manage the 347 current patients living with RHD in Timor-Leste. A treatment program can last up to 10 years.
What are we doing?
Support access to treatment via our Penicillin Program
Every week our nurses collaborate with Ministry of Health doctors and nurses to ensure access to life saving penicillin.
We are also promoting early detection through screening and access to echocardiogram
Conduct 13 mentoring trips per year
Develop national guidelines
We created the guidelines that ministry has now adopted as their official guidelines have been approved and adopted by the Timorese Institute of Health.
They are being used to help model a new national program.
Our guidelines have been
Officially approved for use in Timor-Leste
Training and Mentoring
Using our approved RHD guidelines we are working with the Ministry of Health to to implement RHD training for doctors and nurses across Timor Leste.
This training will improve early detection and access to appropriate care including life saving antibiotics
Launch this training in 2022
Working with East Timor Hearts Fund we provide Cardiac Clinic that give patients access to the same quality of expertise that is available in Australia, but with local cultural considerations. The Clinics are currently held via video conferencing.
So far we have:
Run 3 clinics per year
Referral to surgery in Australia
When a patient is identified as needing surgery because of RHD, we help with visas, logistics and ensuring that the patient has smooth transport.
We do this incredible work in partnership East Timor Heart’s fund.
So far we have:
Supported more than 20 RHD patients to get surgery in Australia
Our team works with local health staff to build community awareness and engagement. This is critical to promoting RHS action
Launch our first event in 2022
Latest News about our RHD Program
How your donation helps
A little goes a long way to improving health in Timor-Leste
Can the cost of a benzocaine penicillin dose from Australia. Which is less painful for the patient than the currently available powdered penicillin.
Covers the cost of a local doctor in our RHD mentoring program.
Covers the cost of the salary for one of our RHD nurses.
Grow our current RHD program to give the gift of good health to even more children.
It currently costs around $100,000 a year to provide the current RHD service.
In the future we would like to further develop training on the national guidelines, fund an echocardiography training (with Menzies School of Research) program, support research and develop audio-visual community education resources.